Monday, May 14, 2012

6 Month Milestone for Soliris

Well today is a pretty special day. Today marks the 6 month anniversary that Christian has been on his new miracle drug, Soliris.

We have been going to Houston every other week for the infusions and have experienced no setbacks and no side-effects.

Workups for to be placed on the transplant list are ongoing and we expect an announcement in the coming weeks on that front. This truly is a miracle time in the lifelong struggle Christian has fought against this devastating disease.

To look back and see where we were vs where we are today - on the cusp of a transplant and all of the benefits Christian can realize by getting it at this time - it is pretty amazing.

Thanks for all of your kind thoughts and prayers.

Take care,

Kiki's Dad

No comments: