Friday, December 30, 2011

A busy January 2012 - Renal transplant workup dates determined

Things are starting to really move fast for Christian.

The transplant team at Texas Children's have built our workup schedule. Christian will travel to Houston January 8th-9th, 11th-13th, 18th and 22nd-23rd! The workups include suitability evaluation, ultrasounds, bone surveys, bone aging, heart evaluation (a little know side effect of dialysis is severe heart stress and left ventricular hypotrophy leading to heart attacks and death - sample article), dieticians, social work and financial counselors.

We'll keep everyone up to date as things proceed.

Thank you to those who have responded to our 2K for Life! campaign. We've only discussed this with a few people and the response has been overwhelming. We really need your support, so please talk it up. Thanks again.

Kiki's Dad

Tuesday, December 27, 2011

Soliris infusions - trial completed, starting long term treatments

Today is a great milestone. Christian has now completed the 5 weekly trial infusions that started in mid-November and has tolerated the medicine well. Dr. S has now moved us into the long term phase of his infusion schedule.

For the next 6 months Christian will travel to Houston twice a month for the infusions of Soliris, with one of those visits doubling as our renal clinic visit.

2012 is really shaping up to be a great year of transition for Christian's care. Thanks to all who have inquired about us and we'll update again soon.

Take care,

Kiki's Dad