Monday, August 27, 2012

Quick update, then evacuate!

Well this is kind of surreal... 7 years ago to the day we were evacuating Katrina and, as we've posted here, that was the beginning of a very, very rough time for Christian. Needless to say we are in a much better position this time around - from both a medical and an experience point of view.

To all of our friends and family, and even some new ones who made it to the fundraiser yesterday, we are so, incredibly blessed. The event turnout was great, it looked like everyone was having a fantastic time and we had a very successful fundraiser.

To all who helped, donated and visited - THANK YOU!

Season ticket winner: Ken Brown and Son's from New Orleans! We will touch base soon to arrange delivery of the tickets. This looks to be a great season for our Tigers!!!

I'll have keep this short as we will be heading out to Houston at some point today. Look for updates of pictures and info from the event in the next few days.

Again, MANY THANKS!!!!

Kiki's Dad

Saturday, August 25, 2012

Kickoff Sunday

It looks like the weather will be great and we have had a wonderful response. We really look forward to seeing many of our friends and making some new ones.

For those not able to make it, check back here in the morning as we are working on possibly having an internet video feed live from the event. We will test in the morning and if all goes well there will be a link here on the front page.

Kiki's Dad

Friday, August 24, 2012

Excited and nervous...

It's been a bit of an emotional roller coaster here these last few days. The Kidney Kickoff is truly looking to be a fun time and wonderful event, but boy have we been rolling through some old, tough memories as we prepare. We are so very blessed to have a wonderful family and group of friends. You all are the best and truly the wind beneath our wings.

Take care and hope to visit with you soon.

Kiki's Dad

Monday, August 20, 2012

A little weekend scare...

Well right on schedule... when things are trending well for quite some time there is always the hiccup that gets thrown in the mix to keep us on our toes.

This has been a really fascinating few weeks in Christian's care and physically things have been running rather smoothly.

Until Saturday night that is. We had our Friday "off day" from dialysis as is usual, meaning that his last treatment was Thursday evening. There was lot of family stuff going on Saturday so we planned to dialyze in the evening. That evening we set up the machine and then attempted access and had trouble with his "B" port. No problem we'll wait a few hours and try for a midnight treatment.

Midnight comes, we try again and have to give it up after an hour of  access attempts. Now we're getting worried. Christian and Aida were heading to Houston Sunday for his Soliris infusion and if we could not get access early Sunday then we were going to have to try to get a treatment scheduled in Houston for Monday. That would be nearly 3 1/2 days without a treatment and he was really getting full of fluid.

Thank goodness on the third or fourth attempt Sunday morning we were able to get the "B" port and got a full 4 hour session in before they left.

However, it reminds me that we get complacent when things are going good. Christian really should have 3 access ports and when we lost one earlier this year we have not made it a priority to get it re-created.

Kiki's Dad