Wow, how fast does a month fly by these days?
As you can probably tell, things have gone pretty well since I last updated. We have gone back to once a month clinic vists as Christian's lab results have continued to remain positive.
Things were so tough during December through February that we still have not implemented the exercise routines into Christian's regimen, but that will be our focus this month.
One of the excercises we really need to get on top of is the stretching of the IT band (ILIOTIBIAL TRACT) as shown in the picture. This is one of the causes of the curving of the legs we see in Christian's development - the deficiency in nutritional complements and build up of wastes in the body that the kidney would normally regulate cause his bones to weaken and his ligaments are tight.
Couple that along with the normal pressure of standing / walking during the day and one of the side effects of long term kidney disease is a curving of the lower legs.
The condition is known as genu valgum or knock knees and can become quite severe in kidney patients if not addressed. The good news is that with consistent exercise and better nutrition Christian can grow through it. Currently his legs are not severely affected and that is good news.
The better news is that if we get one more good month of labs, the doctors are going to put Christian back on growth hormone. He has been off of the hormone for about 3 years and getting back on it will be great. It will be nice to add some more height if we can and keep him from falling too far behind his friends and classmates.
We're also going to take this month to get some additional content up on Christian's site including pictures and a special video. Look for that in about 2 weeks.
Thanks for stopping by and keep plugging!
Hope and love,
Kiki's Dad
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