Well, Aida and Christian left for Houston today. It wasn't starting out great because the local weather channels were all talking about how bad a day the weather was going to be. However most of the weather moved through before they hit the road so there weren't any problems.
I don't think Aida is looking forward to this visit. We've had a two week timetable to come up with some systems in the home for the kids and we had a bad two weeks - we're not ready for the info the support staff is going to be looking for.
On our last visit to clinic, they increased the therapy Christian gets in dialysis by 50% - and it has added an hour to his therapy time. So, before it was a process of about 3 1/2 to 4 hours - typically 45 minutes of prep, 2:45 of "run time" on the machine and 30 minutes of post-therapy take down. Now he processes 15 liters of fluid instead of 10 and it has increased the "run time" to 3:30 to 3:45 of time. That means we're spending 4 1/2 to 5 hours a day on the machine.
And with that, the schedule we worked to handle the after school time with homework, dinner time, family time and dialysis time is out the window. 2 weeks forward, 2 weeks treading water. We've made sooo much progress, but boy it sure moves slowly.
I'll update tomorrow or Friday with how things went. Thanks for stopping by.
Kiki's Dad
No comments:
Post a Comment