Thursday, January 17, 2008

Heading West, Again

Well, Aida and Christian left for Houston today. It wasn't starting out great because the local weather channels were all talking about how bad a day the weather was going to be. However most of the weather moved through before they hit the road so there weren't any problems.

I don't think Aida is looking forward to this visit. We've had a two week timetable to come up with some systems in the home for the kids and we had a bad two weeks - we're not ready for the info the support staff is going to be looking for.

On our last visit to clinic, they increased the therapy Christian gets in dialysis by 50% - and it has added an hour to his therapy time. So, before it was a process of about 3 1/2 to 4 hours - typically 45 minutes of prep, 2:45 of "run time" on the machine and 30 minutes of post-therapy take down. Now he processes 15 liters of fluid instead of 10 and it has increased the "run time" to 3:30 to 3:45 of time. That means we're spending 4 1/2 to 5 hours a day on the machine.

And with that, the schedule we worked to handle the after school time with homework, dinner time, family time and dialysis time is out the window. 2 weeks forward, 2 weeks treading water. We've made sooo much progress, but boy it sure moves slowly.

I'll update tomorrow or Friday with how things went. Thanks for stopping by.

Kiki's Dad